About NIPDP
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About NIPDP
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The Northern Ireland Public Data Panel (NIPDP) is a panel that has been set up to facilitate conversations with the public about data use in research, innovation, service delivery & decision-making. NIPDP aims to discuss how our data is or could be used for public good.
Panel members will:
- Explore our understanding of how data is collected and used
- Advise on how public trust, transparency and acceptance in the use of data can be supported
- Discuss the meaning and evidencing of public benefit in data use
- Members will also be co-developing the panel and its work, and advocating for its use.
- About the Partners
The Northern Ireland Public Data Panel (NIPDP) pilot is a partnership initiative between the Administrative Data Research Centre Northern Ireland (ADRC NI) and the Digital Health and Care Northern Ireland (DHCNI).
Administrative Data Research Centre Northern Ireland (ADRC NI) is a partnership between Ulster University and Queen’s University Belfast. The centre makes it possible for researchers to access information collected by national and local government and other public sector organisations (typically in the delivery of services). ADRC NI is part of the wider Administrative Data Research UK network (ADR UK).
Health & Social Care data should always be kept safely and securely, with access controlled through a transparent system of approvals which met best practice and standards. The Northern Ireland Trusted Research Environment (NITRE) is part of Health and Social Care Data Institute (HSCDI) which focuses on development of data and connectivity infrastructure to enable collaborative data research and evaluation to improve our insights into health and social care.
- Who We Are
Meet the people behind Northern Ireland Public Data Panel (NIPDP)
Elizabeth NelsonCo-Director, NIPDPPublic Engagement, Communications and Impact Manager ADRC NI
Elizabeth is the Public Engagement, Communications and Impact Manager at the Administrative Data Research Centre Northern Ireland (ADRC NI) where her remit includes developing partnerships with voluntary, community and social enterprise (VCSE) sector groups as well as policymakers.
She holds a Master of Laws in Human Rights Law from Queen's University Belfast.
She has extensive experience in engaging with vulnerable and disadvantaged communities, and enhancing the participation of these groups in politics, research and policymaking.
Frances BurnsCo-Director, NIPDPNITRE Lead
Frances is lead for the Health and Social Care Northern Ireland Trusted Research Environment (NITRE), part of the HSC Data Institute.
She is Department of Health lead for the implementation of regulations for controlled use of confidential patient information for purposes other than direct care.
She is Director of the Northern Ireland Public Data Panel (NIPDP) a cross-sectoral infrastructure for public dialogue in Northern Ireland, and a member of the Understanding Patient Data UK Steering Group.
Frances holds a PhD in research and its impact pathways.
John WilsonBusiness Support Manager, NIPDP
John is the Business Support Manager for the Northern Ireland Public Data Panel (NIPDP), part of the HSC Data Institute for Digital Health Care NI, & Northern Ireland Trusted Research Environment.
He holds an Bachelor of Arts in Social Sciences from Institute of Technology Dublin.
John has experience in engaging with the public working across multiple sectors in Ireland and the United Kingdom.
- NIPDP News
Latest NIPDP News. News updates to follow.
- NIPDP FAQ
FREQUENTLY ASKED QUESTIONS:
Northern Ireland Public Data Panel
When and where are the sessions?
The first session will take place in person in Belfast in October 2024 from 10am to 4pm. There will be 4 additional sessions over the coming year. At the first meeting we will discuss when and where the other sessions will take place and whether some or all of them will be online.
Is there a Dress Code?
There is no dress code. Please wear whatever feels comfortable for you.
What will taking part involve?
If you are selected to take part you will have the opportunity to meet with people from all walks of life. You will hear from engaging speakers, and discuss the issues involved within the group. Groups sessions will have a facilitator to make sure everyone has their voice heard. You do not need to have any knowledge of the topics – all the information you need will be provided.
How will you ensure that the panels are accessible?
The in-person meetings will be held at an accessible venue with disabled parking available. Lunch will be provided, and transport expenses will be covered. Everyone will have access to a prayer room or quiet space during the day. We aim to keep the event as jargon-free as possible.
How will payments for attending be made, reimbursed for travel?
Remuneration for participation will be made by Bank Transfer or Gift Vouchers, both options are available as your preferred method of payment.
Please keep a receipt of your method of travel, we will reimburse this cost.
Please note child minding costs will only be reimbursed on submission of a receipt from a registered child-minding business.
Will I need a device or internet connection?
If you do not have a suitable device or internet connection for use during the online meetings, please let us know.
We can also support you to learn the IT skills needed to take part in the Northern Ireland Public Data Panel (NIPDP).
Support can be through one-to-one phone calls or online introductory sessions. Technical support during the sessions is also available.
We will be in contact with you with additional support documents should you require.
What is a Public Panel?
This Panel will follow an established democratic process used all over the world. It brings together a group of people selected by lottery, who broadly represent the entire community. The people who attend will learn about the issues and then discuss them with one another. They will then make deliberations about what should happen and how things should change.
Who is running the Panel?
The Northern Ireland Public Data Panel (NIPDP) is a new initiative to provide a forum for members of the public to discuss and inform the use of data for public benefit. It is a joint initiative between the HSC Northern Ireland Trusted Research Environment and the Administrative Data Research Centre Northern Ireland founded by Queen’s University Belfast and Ulster University. See website for more details
You can contact NIPDP
You can contact us by
telephone (0) 300 555 0113,
by email info@nipdp.org, or by post to
NIPDP, DHCNI,
2nd Floor, 12-22 Linen hall Street, Belfast, BT2 8BS
Or
CPH, Centre for Public Health, Queen's University Belfast,
Institute of Clinical Science,
Block A, Royal Victoria Hospital, Belfast BT12 6BA
Please note each Panel Participant will be contacted by telephone to confirm participation.