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Home
News
Events
Rare Disease Day 2020
Research
Postgraduate research projects
Undergraduate research projects
Multiomics for rare disease diagnosis
Carers Project Details
REDRESS_Rare_2020-2023
COVID-19
Charity_Survey
COCOON study: home & community delivered care
COVID-19 clinical impact
Shielding
IMPaCCT_study
Educational Resources
People
Past team members
Patient and public partners
Charity partners
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Rare Disease Focus: supporting rare disease throughout all communities
Rare Disease Focus: supporting rare disease throughout all communities
Latest News
Early Career Researcher Award in PPIE
Understanding the Journey from the Womb to Obtaining a Rare Genetic Diagnosis in Children.
Genomics England Participation Panel Recruitment
Northern Ireland Rare Disease Action Plan Progress Report Update 1st April 2023 - 31st March 2024
EJP survey on Data Resources and Tools Knowledge Awareness
Connswater Community Greenway: Accessibility and inclusion study.
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Latest Events
International PPI Network & Cochrane Learning Live Webinar
10/10/2024 @
9:00AM - 10:00AM
Online
International PPI Network & Cochrane Learning Live Webinar
26/11/2024 @
5:00PM - 6:00PM
Online
International PPI Network & Cochrane Learning Live Webinar
4/12/2024 @
3:00PM - 4:00PM
Online
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Raising awareness & supporting rare disease throughout all communities