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Online workshop for Carers of people living with rare disease in Northern Ireland

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Are you caring for someone living with a rare disease or “syndrome without a name” (SWAN) in Northern Ireland?

Please join us and share your experiences to help us design an online resource that provides the support and information that Carers need!

Share your thoughts, ideas, and views at our online meeting: 10.00 – 12 noon, Friday 31 May 2024

For more information please contact raredisease@qub.ac.uk

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Event Organiser Details
Name	AJ McKnight and Lynne Lohfeld
Email	raredisease@qub.ac.uk
Website	https://www.qub.ac.uk/sites/RareDisease/

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